本研究旨在探究失智症家庭照顧者在照顧失智親人過程中主觀的受苦及因應經驗。採用詮釋現象學研究方法，邀請四位自願受訪者，以半結構深度訪談蒐集的文本資料來分析。結果：失智症家庭照顧者之受苦經驗內涵為：對失智症的無知和退化進展束手無策；漫長病程變數多，長期照顧的考驗層出不窮；無法由失智親人確知其需求，常處在矛盾疑惑和不安自責中；經歷關係失落的痛楚，只能持續單向地對失智親人付出；照顧者對其他家庭及工作的角色責任感到拉扯虧欠；照顧者常感孤軍奮鬥，為難於手足支持不夠或照顧意見相左。失智症家庭照顧者之因應經驗內涵為：照顧的動力來自維持與失智親人的關係連結；照顧互動是依循失智親人的生命脈絡去滿足雙方的需求；照顧的主控感在於專注此時此刻的陪伴，珍惜當下雙方的相處；照顧過程有賴專業照護系統的支援；照顧的力量來自於對失智親人不離不棄的意志力，接受承擔照顧責任；照顧的成就在於盡心盡力達成子女的角色責任，了無遺憾；照顧者從照顧經歷覺察對自己身體的照顧，體悟老化與死亡，學習愛。研究結果可為失智症家屬提供經驗借鏡，並指引出助人者對待照顧者的視角。

關鍵詞：失智症、因應、受苦、家庭照顧者、照顧經驗

關鍵字
失智症、因應、受苦、家庭照顧者、照顧經驗

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